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ENVRI-FAIR D7.8: Test and validation at EOSC level

This deliverable focuses on capturing the current status of testing and validation of services from the RI’s and ENVRI-Hub itself, that are both exposed to EOSC. This means that services are in scope that are shared via the ENVRI Catalogue of Services to the EOSC marketplace. The EOSC validation activities will check the readiness of the ENVRI-FAIR services at the sub-domain and cluster level for

A Market of Lived Experience : User Involvement and the Commodification of Personal Experiences of Mental Illness

Working actively to engage service users in participatory practices is both a policy expectation and a moral imperative for mental health social workers in contemporary Western mental health care. Recent research suggests that such practices of service user involvement are becoming increasingly individualised and driven by market logic. Based on an ethnographic study within a Swedish public psychi

More detailed data does not always raise the costs : Experience from a Swedish cost of alcohol study

The aim is to investigate the effect of availability and level of detail of data on cost estimates of alcohol consumption. Using the recent Swedish cost of alcohol study as baseline, limitations on data are applied, forming two models. The costs of alcohol in Sweden are re-estimated in the two models and compared to the baseline, to establish the magnitude and direction of the bias resulting from

Socioeconomic status and geographical factors associated with active listing in primary care : A cross-sectional population study accounting for multimorbidity, age, sex and primary care

Background: Socioeconomic status and geographical factors are associated with health and use of healthcare. Well-performing primary care contributes to better health and more adequate healthcare. In a primary care system based on patient's choice of practice, this choice (listing) is a key to understand the system. Objective: To explore the relationship between population and practices in a primar

High-quality RMD rehabilitation and telehealth : Evidence and clinical practice

Within rheumatology, telehealth is essential to modern rehabilitation due to the demographic development with more and more elderly people. At present, telehealth solutions are used as part of the rehabilitation process in assessment, interventions and evaluation. Telehealth interventions are as effective as conventional follow-ups or self-management assessments, but the evidence on the effect is

Modeling the cost-effectiveness of treatment of rheumatoid arthritis with rituximab using registry data from Southern Sweden

Objectives: The aim of this study was to estimate the cost-effectiveness of rituximab in patients not responding adequately to the first tumor necrosis factor (TNF) inhibitor using a model constructed to predict resource consumption and health outcomes in a population-based registry of biological treatments in Southern Sweden (SSATG). Methods: The model was developed as a discrete event simulation

The importance of existential dimensions in the context of the presence of older patients at team meetings—in the light of Heidegger and Merleau-Ponty's philosophy.

The aim of the present study is to explore interpersonal dimensions of the presence of older patients at team meetings. The theoretical foundation of the study is grounded in caring science and lifeworld phenomenology. The results from two empirical studies, that indicated the need for a more in-depth examination of the interpersonal relationships when an older patient is present at a team meeting

Registered nurses' perceptions of conditions for patient education - focusing on organisational, environmental and professional cooperation aspects

Aim To describe nurses' perceptions of conditions for patient education, focusing on organisational, environmental and professional cooperation aspects, and to determine any differences between primary, municipal and hospital care. Background Although patient education is an important part of daily nursing practice, the conditions for this work are unclear and require clarification. Method A strat

Coding of procedures documented by general practitioners in Swedish primary care-an explorative study using two procedure coding systems

Background: Procedures documented by general practitioners in primary care have not been studied in relation to procedure coding systems. We aimed to describe procedures documented by Swedish general practitioners in electronic patient records and to compare them to the Swedish Classification of Health Interventions (KVA) and SNOMED CT. Methods: Procedures in 200 record entries were identified, co

Health-related quality-of-life in children with coeliac disease, measured prior to receiving their diagnosis through screening

Objective To compare the health-related quality-of-life (HRQoL) of children with screening-detected coeliac disease (CD), before they learned of their diagnosis, with that of children without CD and in those previously diagnosed with CD. Methods In a cross-sectional CD screening study ('ETICS': Exploring the Iceberg of Coeliacs in Sweden), of 10,041 Swedish 12-year-olds invited, 7567 (75%) consent

Are lifestyle interventions in primary care cost-effective? - an analysis based on a markov model, differences-in-differences approach and the Swedish björknäs study.

Lifestyle interventions affect patients' risk factors for metabolic syndrome (MeSy), a pre-stage to cardiovascular diseases, diabetes and related complications. An effective lifestyle intervention is the Swedish Björknäs intervention, a 3-year randomized controlled trial in primary care for MeSy patients. To include future disease-related cost and health consequences in a cost-effectiveness analys

Management of patients with sore throats in relation to guidelines: An interview study in Sweden.

Objective. To explore how a group of Swedish general practitioners (GPs) manage patients with a sore throat in relation to current guidelines as expressed in interviews. Design. Qualitative content analysis was used to analyse semi-structured interviews. Setting. Swedish primary care. Subjects. A strategic sample of 25 GPs. Main outcome measures. Perceived management of sore throat patients. Resul

Pharmaceutical Industry Off-label Promotion and Self-regulation: A Document Analysis of Off-label Promotion Rulings by the United Kingdom Prescription Medicines Code of Practice Authority 2003-2012.

Background: European Union law prohibits companies from marketing drugs off-label. In the United Kingdom — as in some other European countries, but unlike the United States — industry self-regulatory bodies are tasked with supervising compliance with marketing rules. The objectives of this study were to (1) characterize off-label promotion rulings in the UK compared to the whistleblower-initiated

To be motivated or only comply - patients' views of hypertension care after consultation training for nurses

Objective: This paper reports on patients' perspectives on the nurse management of hypertension following consultation training, elicited as part of a randomised controlled study. Method: Telephone interviews were conducted with 16 patients in an intervention group (IG) and eight patients in a control group (CG), 3 years after nurses' consultation training in primary health care. By means of a 3-d

Concordance between elderly patients' understanding of and their primary healthcare physician's diagnosis of heart failure

Objective. The objective was to study primary healthcare patients' understanding of their diagnosis of heart failure (HF), using patients treated for diabetes mellitus (DM) as a comparative group. Design. A cross-sectional community based study. Setting. Karlskrona community situated on the Swedish south-east coast with 60 600 inhabitants. Subjects. A total of 1402 subjects, aged 60 - 96 years in

Are there any clinical characteristics of depression in elderly people that could be useful for case finding in general practice?

OBJECTIVES: The aim of this study was to identify clinical characteristics of depression in elderly people that could be useful for case finding in general practice. DESIGN: A cross-sectional study of clinical characteristics through review of medical records. SETTING: Herrhagen health centre, Karlstad, Sweden. SUBJECTS: Seventy-one persons with a high depressive score in a screening of depressive

Application of Rasch analysis in the development and application of quality of life instruments

This paper discusses recent advances that have been made in the field of psychometrics, specifically, the application of Rasch analysis to the instrument development process. It emphasizes the importance of assessing the fundamental scaling properties of an instrument prior to consideration of traditional psychometric indicators. The paper introduces Rasch analysis and shows how it has been applie