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Twin Registries Moving Forward and Meeting the Future: A Review

Twin registries have developed as a valuable resource for the study of many aspects of disease and society over the years in many different countries. A number of these registries include large numbers of twins with data collected at varying information levels for twin cohorts over the past several decades. New publication in Cambridge Core

https://www.lupop.lu.se/article/twin-registries-moving-forward-and-meeting-future-review - 2025-10-03

Ny utlysning från Vetenskapsrådet

Detta bidrag syftar till att stödja internationella samarbeten inom det europeiska programmet CHIST-ERA, som stödjer forskning inom informations- och kommunikationsteknologi (IKT). Sverige är via Vetenskapsrådet ett av de 24 länder som deltar i CHIST-ERA-utlysningen där forskning av högsta vetenskapliga kvalitet i internationell konkurrens premieras. Vetenskapsrådet deltar i utlysningen inom ämne

https://www.lupop.lu.se/article/ny-utlysning-fran-vetenskapsradet - 2025-10-03

Nya utlysningar från Vetenskapsrådet

Följande utlysningar från Vetenskapsrådet är nu öppna. Bidrag för aktiviteter inom MINT-ämnen vid nationella forskningsinfrastrukturer (Söks av organisation)Tage Erlanders gästprofessur (Söks av organisation)Bidrag till forskningsmiljö inom klinisk behandlingsforskningKonsolideringsbidrag (Skissansökan)Internationell postdokKerstin Hesselgrens gästprofessur (Söks av organisation)Olof Palmes gästpr

https://www.lupop.lu.se/article/nya-utlysningar-fran-vetenskapsradet-0 - 2025-10-03

Nya utlysningar från VR

Följande utlysningar från Vetenskapsrådet är nu öppna Projektbidrag inom humaniora och samhällsvetenskap  Projektbidrag inom medicin och hälsaProjektbidrag för digitalisering och tillgängliggörande av kulturarvssamlingarProjektbidrag för utveckling av metoder för ersättning, begränsning och förfining av djurförsök (3R)Tidskriftsbidrag inom humaniora och samhällsvetenskap (Söks av organisation)Bidr

https://www.lupop.lu.se/article/nya-utlysningar-fran-vr - 2025-10-03

First results from the Swedish National Pancreatic and Periampullary Cancer Registry.

Results from the Swedish National Registry are satisfactory and comparable to international standards. Trends over time show increasing resection rates and some improved results. Better collaboration and openness within pancreatic surgeons is an important side effect. New publication in the official Journal of the International Hepato Pancreato Biliary AssociationRead more here

https://www.lupop.lu.se/article/first-results-swedish-national-pancreatic-and-periampullary-cancer-registry-0 - 2025-10-03

Learning what works: a framwork for causal inference from observational data

This is an open seminar with professor Miguel Hernán A 3 half-day seminar on Causal Inference with Miguel Hernán, professor of Biostatistics and Epidemiology at Harvard School of Public Health.The scheduel is as follow:Monday May 6 at 1-5PMTuesday May 7 at 1-5PMWednesday May 8 at 9-12AMLocation: Arvid Carlsson, Acadmicum, GothenburgRead more here 

https://www.lupop.lu.se/article/learning-what-works-framwork-causal-inference-observational-data - 2025-10-03

Quality indicators and their regular use in clinical practice: results from a survey among users of two cardiovascular National Registries in Sweden

Most respondents used quality indicators from the two cardiovascular NQRs infrequently (<3 times/year). The results indicate that linking registration of quality indicators to using them for QI activities increases their routine use and makes them meaningful tools for professionals. New publication in International Journal for Quality in Health CareRead more here

https://www.lupop.lu.se/article/quality-indicators-and-their-regular-use-clinical-practice-results-survey-among-users-two - 2025-10-03

Patient-reported outcome and experience measures for diabetes: development of scale models, differences between patient groups and relationships with cardiovascular and diabetes complication risk factors, in a combined registry and survey study in Sweden.

The questionnaire measures and detects differences in patient well-being, abilities and judgements of diabetes care, and identifies areas for improvement. To further improve diabetes care, we conclude that patient-reported measures are important supplements to cardiovascular and diabetes complication risk factors, reflecting patient experiences of living with diabetes and diabetes care. New public

https://www.lupop.lu.se/article/patient-reported-outcome-and-experience-measures-diabetes-development-scale-models-differences - 2025-10-03

Causal models adjusting for time-varying confounding—a systematic review of the literature

There has been marked growth in reports addressing exposure-affected time-varying confounding. This was driven by work in a small number of topic areas, with other areas showing relatively little uptake. In addition, despite developments in more advanced methods such doubly robust techniques and estimation via machine learning, implementation has been largely concentrated on the simpler, yet poten

https://www.lupop.lu.se/article/causal-models-adjusting-time-varying-confounding-systematic-review-literature - 2025-10-03

Dental Implant Quality Register-A possible tool to further improve implant treatment and outcome.

The Board of EAO (European Association for Osseointegration) has discussed an initiative to explore the conditions to establish a Dental Implant Register. It was suggested to bring this issue to the EAO Consensus Conference 2018 for a discussion and to possibly propose relevant and manageable parameters. This article presents some select examples from quality registers in the medical field. New pu

https://www.lupop.lu.se/article/dental-implant-quality-register-possible-tool-further-improve-implant-treatment-and-outcome - 2025-10-03

Comparison of agreement between internet-based registration of patient-reported outcomes and clinic-based paper forms within the Swedish Rheumatology Quality Register.

Internet-based reporting for patient-reported outcomes in a clinical setting resulted in similar data for VASs and corresponding disease activity scores to clinic-based reporting on paper forms. New publication in Scandinavian Journal of RheumatologyRead more here

https://www.lupop.lu.se/article/comparison-agreement-between-internet-based-registration-patient-reported-outcomes-and-clinic-based - 2025-10-03

De-identified linkage of data across separate registers: a proposal for improved protection of personal information in registry-based clinical research.

Over the last decades the advent of digital documentation has provided research communities with valuable resources of information for clinical research. To utilize the potential of information about patients, their health care, and its outcome that is already available in different registers, the possibility to cross-reference information from different registers is inevitably required. New publi

https://www.lupop.lu.se/article/de-identified-linkage-data-across-separate-registers-proposal-improved-protection-personal - 2025-10-03

Finnish National Esophago-Gastric Cancer Cohort (FINEGO) for studying outcomes after oesophageal and gastric cancer surgery: a protocol for a retrospective, population-based, nationwide cohort study in Finland.

Surgery for oesophageal and gastric cancers is associated with high morbidity, mortality and poor quality of life postoperatively. The Finnish National Esophago-Gastric Cancer Cohort has been established with the aim of identifying factors that could contribute to improved outcomes in oesophago-gastric cancer. New publication in BMJ Open.Read more here

https://www.lupop.lu.se/article/finnish-national-esophago-gastric-cancer-cohort-finego-studying-outcomes-after-oesophageal-and - 2025-10-03

Assessing the Nationwide Impact of a Registry-Based Randomized Clinical Trial on Cardiovascular Practice.

In Sweden, the results of the TASTE trial were impactful in daily clinical practice and led to a relevant decrease in TA use in ST-segment-elevation myocardial infarction patients undergoing percutaneous revascularization. New publication in Circulation Cardiovascular interventions.Read more here.

https://www.lupop.lu.se/article/assessing-nationwide-impact-registry-based-randomized-clinical-trial-cardiovascular-practice - 2025-10-03